Emotional Day for this Auntie & Uncle

Some of my personal feelings (let me vent just once):
So far it has been fairly easy to manage my emotions since this started about a 11 days ago, but today I couldn't contain much.  This was the first time I got to see & touch lil' Will (we were gone in Yosemite with all the family and Carter & Claire all last week) and then I was pretty sick the last few days since we have been home (thus the mask in the room with Will), and it was VERY very hard to see our little Will laying so helpless like that and unable to get comfortable. He was awake & aware when we were in the room (which Danny said is not common), but when awake you could tell he was trying to cry, pull out cords, and grimacing in a lot of pain. It is very hard to see and feel so helpless.  We all wanted so bad to pick up that sweet baby and hold him, and you feel so frustrated unable to do so.  The emotion overtook me as I thought of so many little things, but especially how ANY of us in the family (Todd & Carter side) would gladly take that little guys place.

Danny & Sarah are doing amazingly well. Despite the very NORMAL/NATURAL feelings of sadness, and periodic crying. They are still able to know they need to cope, stay a tight knit family with their other children, and understand this is God's will for whatever reason in their lives right now.


The update on their day to day life. They are staying just walking distance down the street at the Ronald McDonald home.  It isn't the greatest place on earth so don't let my description fool you (it would get old very quickly), BUT they are very pleased at how kind and accommodating it is; they have a library, play area, mini gym all within the grounds; and the workers really try to help the kids. They have a very small section of refrigerator they can use and a mini section of cupboard. The kids were having fun running around the facilities, but it could get old fast.

As mentioned earlier the hospital moved today to a newer building. Danny & Sarah both seem very pleased with the staff, nurses, doctors they have dealt with so far and said how it goes such a long way when people are kind and you can tell they sincerely care about little Will.

Here is the news clip of Sarah & Will, just in case you missed it:
http://abclocal.go.com/kabc/story?section=news/health/your_health&id=8255260


UPDATE:
Will's situation has not and probably wont change much.  They are very aware that this could be a very long waiting game. They took him off the dialysis machine today to see how he could do on his own. While we were there (we just got home) he had not made any progress on his own today. But the doctor confirmed that this is NOT necessarily a bad thing, it could kick in at any time, because it is not happening now does not decrease the chance that it ever will.  The e.Coli infection is still strong and he is still fighting it. They also found a different (more rare) type of e. Coli while doing the surgery which they are still waiting for more information on.  Still it does not make his situation particularly better or worse at this time.  He is hooked up everywhere.  The fact that his bowls are not working right now and he has the ostomy bag, which basically (in lame man's terms) means his colon is pulled out of his body at this time in order to function correctly, and it is just....sad.

What everyone has asked, what we would all like to know is: what is the PROJECTION of the future. We just don't know and just have to be patient and wait and see.  We know what the absolute worse case scenario would be, and at this point we just want to remain and think positive, although we all understand that this is a possibility.  BEST case scenario is that his kidneys will begin to function on his own, he will fight off the e.Coli, and they will be able to do more surgeries to help correct his bowels/colon therefore removing his ostomy and he will be able to return home and live his life fully.  Other possible scenarios included partial recoveries which would have long term effects (that even if he did get to go home) he would continue through his life to need dialysis and have issues with his colon & digestive system.

Dan & Sarah again said how grateful they were for the out pour of support and love they felt & have seen thus far. They said a lot of people were outreaching to them & they appreciated it so much that they wanted to respond to everyone because they want them to know of their sincere gratitude. I told them to NOT feel obligated and to just concentrate on William & their family right now and that no one expects responses but that they just want them to know how loved they are, how cared for, how people just want to help, pray for, and assist them. Danny just got very tear eyed when I told him that, so just know even if they don't respond they do get your messages, they do KNOW you care and that you are concerned and really pulling for them.  AND THEY APPRECIATE IT ALL!  They are just occupied with William & emotion right now, they are very busy and preoccupied with these little things.

WE LOVE YOU ALL & AGAIN THANK YOU!